What is Cystic Fibrosis? Cystic fibrosis (CF) is a genetic disease affecting
approximately 30,000 children and adults in the United States. A defective gene causes the body to produce an abnormally thick,
sticky mucus that clogs the lungs and leads to life-threatening lung infections. These thick secretions also obstruct the
pancreas, preventing digestive enzymes from reaching the intestines to help break down and absorb food.
People with
CF have a variety of symptoms including: very salty-tasting skin; persistent coughing, at times with phlegm; wheezing or shortness
of breath; an excessive appetite but poor weight gain. Symptoms vary from person to person due, in part, to the more than
1,000 mutations of the CF gene.
According to the CF Foundation's National Patient Registry, the median age
of survival for a person with CF is 33.4 years. As more advances have been made in the treatment of CF, the number of adults
with CF has steadily grown. Today, nearly 40 percent of the CF population is age 18 and older. Adults, however, may experience
additional health challenges including CF-related diabetes and osteoporosis. CF also can cause reproductive problems.
For
more information about CF visit the Cystic Fibrosis Foundation website at:
http://www.cff.org
The Story of 65 Roses®
65 Roses® is what some children with CF call their disease
because the words are much easier for them to pronounce. Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation
in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization
seeking financial support for CF research. Mary's 4-year old son, Richard, listened closely to his mother as she made
each call. After several calls, Richard came into the room and told his Mom, "I know what you are working for."
Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some
trepidation, Mary posed the question, "What am I working for, Richard?" "You are working for 65 Roses,"
he answered so sweetly. Mary was speechless. She went over to him and tenderly pressed his body to hers. He could not see
the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."
For
37 years, sixty-five roses has been used by children of all ages to describe their disease. But making it easier to say, does
not make CF any easier to live with. The 65 Roses story has captured the hearts and emotions of all who have heard it. The
rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.
Won't you
consider donating to the Cystic Fibrosis Foundation when you sit down to do your year-end tax planning? Won't you consider
purchasing some of our items for yourself or gifts for others? A portion of the proceeds from the sale of every item here
will be donated directly to the Cystic Fibrosis Foundation.